Interview with Reggie Bibbs on his life with neurofibromatosis

Friday, December 14, 2007

Neurofibromatosis (NF) is a genetic condition causing benign tumors (neurofibromas) to grow along certain types of nerves and, in addition, it can affect the development of bones or skin. There are several variants of the disease but type 1 and type 2 NF account for the vast majority of cases.

The disease manifestations can vary from very mild to severe. Major symptoms include growths on and under the skin; skin pigmentations called café au lait spots in type 1; acoustic nerve tumors and consequent hearing loss in type 2. Growths can affect nearly all parts of the body, and pressure on nearby structures can cause a wide variety of complications. There is a small risk that the tumors transform into malignant cancerous lesions.

NF is one of the most common single-gene human diseases; around 1 in 2,500-4,000 live births are affected by NF-1, whereas NF-2 occurs in about 1 in 50,000-120,000. Both type 1 and 2 are autosomal dominant conditions, meaning that only one copy of the mutated gene need be inherited to pass the disorder. A child of a parent with neurofibromatosis and an unaffected parent will have a 50% chance of inheriting the disorder. The gene responsible for NF-1 and possibly NF-2 is thought to function as a tumor suppressor gene.

In most cases of neurofibromatosis 1, patients can live normal and productive lives. In about 25-40% of patients there is an associated learning disability with or without ADHD. In some cases of neurofibromatosis 2, the damage to nearby vital structures, such as the cranial nerves and the brainstem, can be life-threatening. When tumors are causing pain or disfiguration, surgery is thus far the only proven beneficial treatment option.

Reggie Bibbs is a 43-year-old-man living in Houston, Texas. Mr Bibbs was born with a genetic disease called neurofibromatosis (NF), which causes him to develop tumors on his body (see infobox on the right). NF can be a subtle disease, but in Bibbs’ case it has left him with a disfigured face and deformed leg. But he is happy with the way he looks, and doesn’t want to change his appearance to please other people. He has launched a successful campaign entitled “Just Ask”, and that’s just what Wikinews did in a video-interview.

The interview was prepared by Wikinews reporter Michaël Laurent with the help of Bertalan Meskó (who has a popular genetics and web 2.0 blog). Their questions were sent to a close friend of Mr. Bibbs, Lou Congelio, who kindly conducted the interview.

This exclusive interview features first-hand journalism by a Wikinews reporter. See the collaboration page for more details.

International participants showcase different industry cultures at 2008 Taipei Game Show

Friday, January 25, 2008

B2B Trade Area of Taipei Game Show, criticized by trade buyers last year, but accompanied with 2008 Taiwan Digital Content Forum, moved to the second floor at Taipei World Trade Center for world-wide participants with a better exchange atmosphere this year.

Not only local OBMs (Softstar Entertainment, Soft-World International Corp., International Games System Corp., …, etc.) but also companies from New Zealand, Canada, Japan, Hong Kong, and South Korea showcased different specialists with multiple styles. Especially on South Korea, participated members from G? Trade Show (Game Show & Trade, All-Round, aka Gstar) showcased gaming industry of South Korea and the G? upcoming at this November with brochures.

In the 2-days Digital Content Forum, world-class experts not only shared industry experiences, members from Taiwan Gaming Industry Association also discussed and forecasted marketing models for gaming industry. With participations from governmental, industrial, and academical executives world-wide, this forum helps them gained precious experiences of digital content industry from several countries.

According to the Taipei Computer Association, the show and forum organizer, the digital content industry in Taiwan was apparently grown up recent years as Minister of Economic Affairs of the Republic of China Steve Ruey-long Chen said at Opening Ceremony yesterday. Without R&Ds from cyber-gaming, and basic conceptions from policies and copyright issues, this (digital content) industry will be fallen down in Taiwan. If this industry wanted to be grown up in sustainability, gaming OBMs in Taiwan should independently produce different and unique games and change market style to market brands and games to the world.

Old deeds threaten Buffalo, NY hotel development

Buffalo, N.Y. Hotel Proposal Controversy
Recent Developments
  • “Old deeds threaten Buffalo, NY hotel development” — Wikinews, November 21, 2006
  • “Proposal for Buffalo, N.Y. hotel reportedly dead: parcels for sale “by owner”” — Wikinews, November 16, 2006
  • “Contract to buy properties on site of Buffalo, N.Y. hotel proposal extended” — Wikinews, October 2, 2006
  • “Court date “as needed” for lawsuit against Buffalo, N.Y. hotel proposal” — Wikinews, August 14, 2006
  • “Preliminary hearing for lawsuit against Buffalo, N.Y. hotel proposal rescheduled” — Wikinews, July 26, 2006
  • “Elmwood Village Hotel proposal in Buffalo, N.Y. withdrawn” — Wikinews, July 13, 2006
  • “Preliminary hearing against Buffalo, N.Y. hotel proposal delayed” — Wikinews, June 2, 2006
Original Story
  • “Hotel development proposal could displace Buffalo, NY business owners” — Wikinews, February 17, 2006

Tuesday, November 21, 2006

Buffalo, New York —Buffalo, New York developers have been stymied by old real estate deeds.

The prospective Elmwood Village Hotel may be scuttled and businesses now located there may be forced to move.

Frustrations over property located in an area once known as “Granger Estates” circulate around a clause in the original deeds over land divided by then-owner Erastus Granger in the early 1800’s.

According to the documents, “no business establishment of any kind whatsoever” shall ever be constructed on the property, and they shall forever be exclusively for residential use only. Also prohibited are barns, farms and stables.

Sam Savarino, CEO of Savarino Companies, the prospective hotel developer, announced that his legal research team found the restrictions on properties located between 1109 and 1121 Elmwood Avenue which also stated in part that “no businesses, hospitality establishment of anykind whatsoever” shall ever be permitted to be built on the property.

Savarino, whom is expected to contest the restrictions, said that his company could have ignored the findings, but that, “we can’t risk the future of a multimillion-dollar project on the hope they wouldn’t be discovered. Our opponents would have had a field day if they’d surfaced after the fact.”

Savarino said his attorneys and researchers are anticipated to determine “exactly what weight the restrictions carry and if there’s a way for the courts to negate them.”

Existing businesses are also jeopardized.

Hans Mobius, owner of some of the restricted properties upon which a carriage house is built, said, he wasn’t aware of any restrictions, and “never had a reason to research the deed and title documents.” He confidently added that, “the lawyers can get this taken care of.”

Other threatened businesses include Don Apparel, H.O.D. Tattoo, Forest Plaza Art Gallery and Allentown Music.

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[youtube]http://www.youtube.com/watch?v=bhdMrx9oDfo[/youtube]

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Four British energy suppliers face investigation into claims of misselling

Sunday, September 5, 2010

The Office of Gas and Electricity Markets (Ofgem), the regulator of the electricity and gas markets in Great Britain, has launched an investigation into four of the largest British energy suppliers over suspicions that they not be complying with face-to-face and telephone sales regulations. The four organisations facing scrutiny could be fined up to 10% of their annual turnover if it is found that they are breaking sales regulations. Scottish Power, npower, Scottish and Southern Energy and EDF Energy are all to face questioning by the organisation.

Ofgem has urged customers of the four companies to alert the energy regulator, “if they are concerned about the sales approach any domestic suppliers have taken when selling energy contracts, either face-to-face or by telephone,” according to a statement. “As part of the investigation process Ofgem will examine any evidence of non-compliance and consider whether there are grounds for exercising enforcement powers.”

New regulations on sales tactics by energy suppliers were recently introduced, and, Ofgem has said, energy suppliers must be “proactive in preventing misselling to customers both face to face and over the phone. Also, if suppliers are selling contracts face to face they must provide customers with an estimate before any sales are concluded. In most circumstances customers should also receive a comparison of the supplier’s offer with their current deal.” Only one in five consumers consider energy suppliers to be trustworthy, and 61% of people feel intimidated by doorstep sales people from energy companies. According to the organisation Consumer Focus, “complaints have declined since new rules came into effect this year, but suppliers still seem to be flouting the rules. Some customers are still being given misleading quotes and information, which leave them worse off when they switch provider.”

The newspaper The Guardian has reported that “householders are reporting that sales agents working for the energy suppliers are giving them misleading information and quotes which leave them worse off when they switch supplier.” Consumer Focus has said that if energy companies continue to break the rules, they could be banned from doorstep-selling completely. The report goes on to say that “new figures from helpline Consumer Direct show that while the number of complaints has fallen since last year, about 200 cases of mis-selling are being reported each month.” However, Scottish Power said it insists on “the highest standards possible for all of our sales agents”, and npower told the Financial Times that it was “confident that the processes we have in place mean that we comply with our regulatory obligations”. EDF added that it was “fully compliant with all obligations regarding sales of energy contracts”.

According to the regulator, the obligations are serious and must be followed by energy supplies, or they will face “tougher sanctions than those available under more general consumer protection law.” Ofgem has published a guide advising consumers what they should do should an energy salesperson contact them in person of by telephone. Improper sales tactics are still common in the industry—in 2008 an Ofgem investigation found that 48% of gas customers and 42% of electricity customers were worse off after switching supplier on the doorstep. Npower was fined £1.8 million in 2008 by the organisation, and Ofgem insists that they are “committed to taking action” over improper sales activities by energy companies. “Suppliers have existing obligations to detect and prevent misselling and new licence conditions were brought in following our probe to further increase protection for customers,” said Andrew Wright, a Senior Partner of the regulator. “We expect all suppliers to comply with these tougher obligations but if our investigations find otherwise we will take strong action.”

HAVE YOUR SAY
What are your experiences with doorstep salespeople? If they persuaded you to change energy providers, were you worse off as a result?
Add or view comments

Head of energy at Consumer Focus, Audrey Gallacher, called the investigation “a welcome step … to address years of customers getting a bad deal on energy prices on their doorstep. While many doorstep sales people will do a good job, the pay and rewards system continues to encourage mis-selling, despite years of regulation and voluntary initiatives. If better advice for customers and enforcement of the tougher rules doesn’t end the flagrant abuse of this form of selling the big question will be whether it should be completely banned.” Christine McGourty, director of Energy UK, which represents the leading gas and electricity companies, said that “the companies involved will collaborate with the Ofgem investigation and are awaiting further details from the regulator. Any sales agent in breach of the code will be struck off the approved energy sales register.” Which? chief executive, Peter Vicary-Smith, has said he considers the situation “shocking”, saying that the investigation “will do nothing to improve consumer trust in energy suppliers. We’re pleased that Ofgem has promised tough measures against any firms guilty of mis-selling. We hope it uses this opportunity to tighten rules around telesales so they are in line with those for face to face sales.”

SNP Westminster Energy spokesperson Mike Weir MP, however, said that the investigation “does nothing to tackle the real problem of fuel prices which leave many Scots facing great difficulty in heating their homes … Rather than tinkering around the edges Ofgem should be looking at how to reduce prices for vulnerable households.” Gareth Kloet, Head of Utilities at Confused.com, one of the UK’s biggest and most popular price comparison services, also welcomed the inquiry. “It is unacceptable for energy companies to mislead customers like this,” he said, adding that Confused.com has previously “urged energy providers to either stop the practice of doorstep selling or make it very clear to households that better deals are available online. There is no reason why door-to-door salesmen can’t show people online deals and even help households switch to them.”

“Our research reveals customers could end up paying £167 more than they need to as door-to-door salesmen are unable to offer the discounts that are applied online. The changes that have been made to date are a welcome addition to safeguard customers; however this review has been much needed for a long time. Hopefully it will mark the end of customers being overcharged and missold,” Kloet continued. “Our message to energy consumers remains the same: they should shop around online to make sure they’re getting the best deal possible and turn these salesmen away.”

Southern Ocean whale slaughter to resume

Tuesday, January 3, 2006

The international environmental organisation, Greenpeace, have been shadowing a Japanese whaling fleet currently operating in the Southern Ocean in Australian Antarctic Territory. They claim a minor victory against the six-vessel fleet, saying no whales have been killed since Christmas Eve. However they expect a resumption of whaling and protest activity soon.

Greenpeace has two ships, MV Esperanza and MV Arctic Sunrise, active near Antarctica, in an effort to disrupt the whalers, who intend on slaughtering over 900 Minke whales and 10 Fin whales in the region this summer. The activists aim to stop the Japanese whaling fleet as it tries to catch nearly 1000 whales for what is claimed to be scientific research.

Greenpeace chief Steve Shallhorn states that the protesters have chased the six-ship fleet northwards, with the vessels now away from the designated whaling zone. Greenpeace plan to maintain their efforts to keep the whalers in the public eye.

“What the fleet is doing is trying to outrun Greenpeace so that it can sneak back into the whaling grounds and resume the kill,” he said. “And for that very reason, we’re doing our very best and are succeeding in keeping up with the factory whaling ship. We are certain that they do not want any further publicity.”

He said Greenpeace will continue its high-speed tailing for as long as it takes. “We’re capable of staying out there for many more weeks,” he said. “The [Japanese] fleet is clearly embarrassed by having their actions exposed to the world, since the spotlight on their activities shows what it really is – commercial whaling with a very thin disguise.”

The whalers have been unable to kill any whales since Christmas Eve due to poor weather and harassment by Greenpeace vessels, and the Washington-based Sea Shepherd ship, RV Farley Mowat. The Sea Shepherd is operating independently of Greenpeace but say they are working towards a common objective – “the shutting down of illegal whaling in the Southern Ocean.”

Greenpeace expedition leader Shane Rattenbury says the whalers have a season of about 100 days. “Their quota is 945 whales. If you lose, say, 10 per cent of those through bad weather, they’ve got an average they need to catch of 10 a day and it’s gone 10 days now without having any whales,” he said. “That starts to add up pretty quickly. They’re under a bit of pressure to get on with the business.”

Japan’s Institute for Cetacean Research have rejected the claims made by Sea Shepherd, that Japanese warship was being sent to Antarctica to protect the fleet against the activists.

The Japanese institute spokesman condemned Sea Shepherd over the claim by Farley Mowat captain Paul Watson, who called on the Australian Government to keep the peace.File:Greenpeace Vessels Esperanza and Arctic Sun.jpg

Sea Shepherd had requested the presence of the Australian navy to monitor events in the Southern Ocean. However, Australia’s environment minister, Senator Ian Campbell, said that Sea Shepherd’s threats to attack the fleet “risk setting back the cause of whale conservation many years”.

Capt Watson said yesterday: “Stop threatening us, Mr Campbell, and charge us if you believe we are acting unlawfully. Stop posing for the Japanese [who] are in blatant violation of international conservation laws.”

Japan’s Fisheries Agency, which conducts the whaling, said the claim was a tactic by Sea Shepherd to try to raise the stakes for extra publicity.

“This is why the environmentalists’ campaign in the Antarctic is a PR stunt: every time they get some media coverage there’s always some member not too far away asking the public for money,” an agency spokesman said in a statement. “Only this time, it completely backfired and now people will question what these groups say.”

The spokesman had no response to Greenpeace’s claim that another vessel had joined the whaling fleet and was refuelling the ships within the boundary of the Antarctic Treaty’s nature reserve.

Mr Rattenbury said the 57 activists and crew aboard the Greenpeace ships were in good health following a quiet New Year’s Day celebration on deck under a midnight sun.

Wikinews Australia has in-depth coverage of this issue: Southern Ocean whaling season (2005-2006)

He said his ships were not in contact with the Farley Mowat, which is believed to be closer to the Antarctic ice shelf. The Farley Mowat’s weblog quoted ship captain Paul Watson as saying the Sea Shepherd group had no conflict with Greenpeace, despite earlier British media assertions.

“As far as I am concerned both Sea Shepherd and Greenpeace are working towards a common objective – the shutting down of illegal whaling in the Southern Ocean,” said Paul Watson.

Greenpeace believes the fleet killed at least 25 whales from the time it contacted the whalers just before Christmas.

Building collapse in Barbados traps family

Sunday, August 26, 2007Miami Dade Fire Rescue, Urban Search and Rescue Florida Task Force 1 Members were on the scene since last night. Search dogs worked the scene all night.

According to current reports, sometime early this morning, an apartment building in Brittons Hill, Barbados fell into a cave below.

Five family members are known to be trapped in the collapse, although reports have not be made as to whether these are the only individuals involved. Rescue workers, as well as several prominent politicians are currently on the scene; two cranes have been deployed to remove debris. Evacuation has occurred, with an extension of this area being discussed.

Miami Dade Police arrived on the scene late Sunday night and are now in a joint effort with the Barbados Defence Force, Barbados Fire Service and Royal Barbados Police Force to rescue possible survivors. Prime Minister Owen Arthur also stated that surveys are currently being conducted to determine the stability of the surrounding area, and only after these reports have been compiled will residents know whether they will be able to return to their homes.

A cadaver dog was sent into the cavern and has identified two areas where there are possible dead bodies. Sadly it is no longer a rescue mission but recovery one.

Creative Hobbies For Women

By Jason Pillay

Hobbies are a great way to maintain an active and healthy lifestyle. The hobby of your choice does not even have to be physically involving. Your choice should ultimately depend on your interest. But if you prefer to stay indoors and explore your creativity, here are some suggestions you may want to consider.

Scrapbooking is perfect for women who are naturally sentimental. Tell a story through photos and come up with a more interesting presentation. In this craft, you develop your creativity and resourcefulness. You do not have to buy all your materials; you can learn how to recycle and turn scraps into something beautiful.

Scrapbooking is a great way of preserving memories. You can create a scrapbook for special events in your life, for your spouse, children, family and even friends. When you work through these memories and live them for a moment, you can get rid of your worries and marvel at happy thoughts.

[youtube]http://www.youtube.com/watch?v=50mHX8_B5-s[/youtube]

Card making is another craft that you may want to pursue. If you have a special skill with words, you can also come up with witty greetings for all occasions. With this activity, you can explore your creative side. And the fruits of your labor may even be useful as you can use these cards for birthdays or for the holidays. So you do not have to send them a generic card; they would even be more touched that you took your time into making a personalized card.

Women also have a natural penchant for accessories. And jewelries are a woman’s best friend. You can also attempt to learn to make some on your own. Start with simple bead work. You can buy a book or attend a class that can help you learn the basics of jewelry making until you are ready to experiment and come up with your own designs.

Just like the cards, jewelries make perfect gifts. As a matter of fact, some individuals start the craft as mere hobbies and eventually branched out into making profits from their designs. If you are looking forward to earning extra and you are particularly talented in this line, jewelry making present a great opportunity to meet your objective.

Pottery making is another example of a creative hobby you may wish to explore. It involves a great deal of concentration and that is a good mind exercise. If you are interested in the craft, you have to enroll in a short course. You may also need to invest a little in equipments. But when you learn the art, it will surely become worth the effort and hard work.

Bag and clothing designs are other activities that can help you discover your talent for fashion and the arts. These are other examples of hobbies you can turn to professional work or business. And there is certainly nothing that beats doing what you love to do and earning from it at the same time. So, explore your options and decide ultimately on what you can commit to.

About the Author: Hobbies is a great activity for stress relief as well as spending time with the family. visit

FooPages.com

for a great list of

hobbies ideas

Source:

isnare.com

Permanent Link:

isnare.com/?aid=1702163&ca=Womens+Interest

Sweden’s Crown Princess marries long-time boyfriend

Monday, June 21, 2010

Sweden’s first royal wedding since 1976 took place Saturday when Crown Princess Victoria, 32, married her long-time boyfriend and former personal trainer, Daniel Westling, 36. The ceremony took place at Stockholm Cathedral.

Over 1,200 guests, including many rulers, politicians, royals and other dignitaries from across the world, attended the wedding, which cost an estimated 20 million Swedish kronor. Victoria wore a wedding dress with five-metre long train designed by Pär Engsheden. She wore the same crown that her mother, Queen Silvia, wore on her wedding day 34 years previously, also on June 19. Victoria’s father, King Carl XVI Gustaf, walked Victoria down the aisle, which was deemed untraditional by many. In Sweden, the bride and groom usually walk down the aisle together, emphasising the country’s views on equality. Victoria met with Daniel half-way to the altar, where they exchanged brief kisses, and, to the sounds of the wedding march, made their way to the the silver altar. She was followed by ten bridesmaids. The couple both had tears in their eyes as they said their vows, and apart from fumbling when they exchanged rings, the ceremony went smoothly.

Following the ceremony, the couple headed a fast-paced procession through central Stockholm on a horse-drawn carriage, flanked by police and security. Up to 500,000 people are thought to have lined the streets. They then boarded the Vasaorden, the same royal barge Victoria’s parents used in their wedding, and traveled through Stockholm’s waters, accompanied by flyover of 18 fighter jets near the end of the procession. A wedding banquet followed in the in the Hall of State of the Royal Palace.

Controversy has surrounded the engagement and wedding between the Crown Princess and Westling, a “commoner”. Victoria met Westling as she was recovering from bulemia in 2002. He owned a chain of gymnasiums and was brought in to help bring Victoria back to full health. Westling was raised in a middle-class family in Ockelbo, in central Sweden. His father managed a social services centre, and his mother worked in a post office. When the relationship was made public, Westling was mocked as an outsider and the king was reportedly horrified at the thought of his daughter marrying a “commoner”, even though he did so when he married Silvia. Last year, Westling underwent transplant surgery for a congenital kidney disorder. The Swedish public have been assured that he will be able to have children and that his illness will not be passed on to his offspring.

Westling underwent years of training to prepare for his new role in the royal family, including lessons in etiquette, elocution, and multi-lingual small talk; and a makeover that saw his hair being cropped short, and his plain-looking glasses and clothes being replaced by designer-wear.

Upon marrying the Crown Princess, Westling took his wife’s ducal title and is granted the style “His Royal Highness”. He is now known as HRH Prince Daniel, Duke of Västergötland. He also has his own coat-of-arms and monogram. When Victoria assumes the throne and becomes Queen, Daniel will not become King, but assume a supportive role, similar to that of Prince Phillip, the husband of the United Kingdom’s Queen Elizabeth II.

Iranian International Master Dorsa Derakhshani discusses her chess career with Wikinews

Tuesday, April 14, 2020

In February 2017, the Iranian Chess Federation announced two teenage chess players, Dorsa Derakhshani and her younger brother Borna Derakhshani, were banned from representing the national team. The federation announced their decision although Dorsa Derakhshani had previously decided and informed the chess federation she did not wish to play for Iran.

Dorsa Derakhshani is currently 21 years old and holds the International Master (IM) as well as Woman Grand Master (WGM) titles. Her brother, Borna, plays for the English Federation and holds the FIDE Master title.

Dorsa Derakhshani was banned since she did not wear a hijab, an Islamic headscarf, while competing at the Tradewise Gibraltar Chess Festival in January 2017. Under the laws of Islamic Republic of Iran, hijab is a mandatory dress code. Her brother Borna Deraskhsani was banned for playing against Israeli Grand Master (GM) Alexander Huzman at the same tournament. Iran does not recognise the existence of Israel, and previously, Irani athletes have avoided playing against Israeli athletes.

Mehrdad Pahlavanzadeh, the president of the country’s chess federation, explained the decision to ban the players saying, “As a first step, these two will be denied entry to all tournaments taking place in Iran and in the name of Iran, they will no longer be allowed the opportunity to be present on the national team.” ((fa))Farsi language: ?????? ????? ?? ??? ??? ?? ??? ????? ?? ?? ???? ???????? ?? ?? ????? ? ?? ??? ????? ?????? ??????? ????? ??????? ? ???? ???? ???? ?? ??? ??? ?? ??????? ????. He further stated, “Unfortunately, something that should not have happened has happened and our national interest is paramount and we have reported this position to the Ministry of Sports.” ((fa))Farsi language: ????????? ?????? ?? ????? ????????? ?????? ??? ? ????? ??? ?? ?? ?? ???? ?????? ???? ? ?? ??? ???? ?? ?? ????? ???? ?? ????? ?????.

IM Dorsa Derakhshani, who currently studies at Saint Louis University in the United States and plays for the United States Chess Federation, discussed her chess career, time in Iran and the 2017 controversy, and her life in Saint Louis with a Wikinews correspondent.